Links and Resources
Comprehensive support information for families navigating disability and NDIS services. Access essential resources, tools, and guidance to help you understand and maximize your NDIS supports while managing the everyday challenges of caring for a child with a disability.
Essential Information for Parents and Families
Whether you’re new to the NDIS or looking for additional support resources, this comprehensive collection provides facts and information specifically designed for parents of children with disabilities or medical conditions, including how to:
- Understand and get the most from the NDIS
- Manage everyday challenges
- Manage uncertainty and grief
- Look after yourself
- Find resources and useful tools
- Find and use early childhood and mainstream services
Condition-Specific Resources and Support
Listed below are a range of resources providing help and support in regard to the disabilities covered by the Better Start initiative, and other relevant information. Click on any link below to view the relevant resources available.
For Service Providers: If you would like to request changes to your contact details or to be listed on this website, please email: betterstart@carersaustralia.com.au
Cerebral Palsy
CPL – Choice, Passion, Life (formerly Cerebral Palsy League)
Cootharinga North Queensland
Community Accommodation and Respite Agency
Cerebral Palsy Alliance (NSW & ACT)
Cerebral Palsy Group
Deafblindness
Able Australia (Victoria)
The Deaf Society of New South Wales
Down Syndrome
Down Syndrome Tasmania Inc
Fragile X
Fragile X Alliance Inc (Victoria) – Clinic and Resource Centre
Hearing Impairment
Deaf Children Australia
The Deaf Society of New South Wales
Parent Council for Deaf Education
Vision Impairment
Vision Australia
Blind Citizens Australia
Angelman Syndrome
Angelman Syndrome Association
Genetic Alliance Australia
CHARGE Syndrome
Genetic Alliance Australia
Cornelia de Lange Syndrome
Genetic Alliance Australia
Cri du Chat Syndrome
Genetic Alliance Australia
Kabuki Syndrome
Australian Kabuki Syndrome Association Inc
Genetic Alliance Australia
Microcephaly
Microcephaly Australia
Genetic Alliance Australia
Prader-Willi Syndrome
Prader-Willi Syndrome (PWS) Association of Australia Inc
Prader-Willi Syndrome Association of Western Australia
Genetic Alliance Australia
Williams Syndrome
Genetic Alliance Australia
Smith-Magenis Syndrome
Genetic Alliance Australia
Rett’s Disorder
Department of Social Services Information
Government Support and System Information
Medicare Information
Click here for information on family and individual entitlements, as well as information for parents and healthcare professionals.
Other Information and Services
Playgroup Australia
Raising Children Network
Better Start Early Intervention Service Providers
Better Start Early Intervention Service Providers are listed on the Department of Social Services website.
Aids and Equipment Services
If you have a disability, you may use aids or equipment to support you in various activities or to improve your quality of life. A number of schemes are available which provide some form of subsidy to eligible applicants for aids and equipment. More information is available at jobaccess.gov.au.
Evaluation of Better Start
An evaluation of Better Start is currently underway, being conducted by ACIL Allen Consulting on behalf of the Department of Social Services. This round of focus groups will discuss key issues regarding whether Better Start is meeting the needs of families and carers.
For information on upcoming consultations and to register your interest, please click here.
Getting Additional Support
If you need personalized guidance navigating these resources or accessing NDIS supports, BetterStart Health provides comprehensive support coordination and early childhood intervention services. Our experienced team can help you understand your options and connect with the most appropriate services for your family’s needs.
Contact our team at 1800 BETTER (1800 238 837) or info@betterstart.net.au to discuss how we can support your NDIS journey and access to quality early childhood services.
Disclaimer: Carers Australia does not endorse or recommend any of the agencies or organisations listed on this website; nor the services that may be provided by them. These details are provided to assist families to find suitable services and supports and to make an informed choice.