Links and Resources
Listed below are a range of resources providing help and support in regard to the disabilities covered by the Better Start initiative.
Listed below are a range of resources providing help and support in regard to the disabilities covered by the Better Start initiative. Click on any disability in the below list to view the relevant resources available:
- Cerebral Palsy
- Deafblindness
- Down Syndrome
- Fragile X
- Hearing impairment
- Vision impairment
- Angelman Syndrome
- CHARGE Syndrome
- Cornelia de Lange Syndrome
- Cri du Chat Syndrome
- Kabuki Syndrome
- Microcephaly
- Prader-Willi Syndrome
- Williams Syndrome
- Smith-Magenis Syndrome
Cerebral Palsy
- Northcott Disability Services (NSW)
Ph: 1800 818 286 | Em: nc@northcott.com.au | Web: www.northcott.com.au - Carpentaria Disability Services (NT)
Ph: (08) 8920 9424 | Em: greg.mcmahon@carpentaria.org.au - Cerebral Palsy League of Queensland
Ph: (07) 3358 8011 | Em: exec@cplqld.org.au | Web: www.cplqld.org.au - Cootharinga North Queensland
Ph: (07) 4759 2000 | Em: CNQ@cootharinga.org.au | Web: www.cootharinga.org.au - Community Accommodation and Respite Agency
Ph: (08) 8347 4588 | Em: cara@cara.org.au | Web: www.cara.org.au - Spastic Centres of South Australia
Ph: (08) 8347 2664 | Em: info@scosa.com.au | Web: www.scosa.com.au - Leveda (South Australia)
Ph: (08) 8256 9800 | Em: leveda@leveda.org.au | Web: www.leveda.org.au - Novita Children's Services (South Australia)
Ph: (08) 8243 8243 | Em: enquiries@novita.org.au | Web: www.novita.org.au - Cerebral Palsy Tasmania
Ph: 001 141 | Em: info@cptas.org.au | Web: www.cptas.org.au - Cerebral Palsy Support Network (CPSN)
Ph: 1300 277 600 | Em: cpsn@cpsn.info | Web: www.cpsn.info - Scope Victoria
Ph: (03) 9843 3000 | Em: contact@scopevic.org.au | Web: www.scopevic.org.au - Yooralla (Victoria)
Ph: (03) 9666 4500 | Em: yooralla@yooralla.com.au | Web: www.yooralla.com.au - The Centre for Cerebral Palsy (WA)
Ph: 1800 198 263 | Em: info@tccp.com.au | Web: www.tccp.com.au - Cerebral Palsy Alliance (NSW & ACT)
Ph: 1300 888 378 | Em: info@cerebralpalsy.org.au | Web: www.cerebralpalsy.org.au - Cerebral Palsy Australia
Ph: (08) 8243 8202 | Web: www.cerebralpalsyaustralia.com
Deafblindness
- Senses Foundation (Adelaide)
Ph: (08) 9473 5400 | Em: admin@senses.asn.au | Web: www.senses.asn.au - Able Australia (Victoria)
Ph: 1300 225 369 | TTY: (03) 9882 6786 | Em: info@ableaustralia.org.au | Web: www.ableaustralia.org.au - Royal Institute for Deaf and Blind Children
Ph: (02) 9871 1233 (TTY/V) | Em: online@ridbc.org.au | Web: www.ridbc.org.au - The Deaf Society of New South Wales
Ph: (02) 8833 3600 | TTY: (02) 8833 3691 | Em: info@deafsociety.com | Web: www.deafsocietynsw.org.au
Down Syndrome
- Down Syndrome NSW
Ph: (02) 9841 4444 | Em: admin@dsansw.org.au | Web: www.dsansw.org.au - Down Syndrome Victoria
Ph: 1300 658 873 | Em: info@dsav.asn.au | Web: www.downsyndromevictoria.org.au - Down Syndrome Association of Queensland Inc
Ph: (07) 3356 6655 | Em: office@dsaq.org.au | Web: www.dsaq.org.au - ACT Down Syndrome Association
Ph: (02) 6290 0656 | Em: admindsa@actdsa.asn.au | Web: www.actdsa.asn.au - Down Syndrome Tasmania Inc
Ph: 1300 592 050 | Em: info@downsydrometasmania.org.au | Web: www.downsyndrometasmania.org.au - Down Syndrome Association of Western Australia Inc
Ph: 1800 623 544 | Em: dsawa@upnaway.com | Web: www.dsawa.asn.au - Down Syndrome Association of Northern Territory Inc
Ph: (08) 8985 6222 | Em: dsant@octa4.net.au - Down Syndrome Society of South Australia Inc
Ph: (08) 8369 1122 | Em: info@downssa.asn.au | Web: www.downssa.asn.au - Foundation 21 (South Australia)
Ph: (08) 8367 8022 | Em: ef21@org.au | Web: www.f21.org.au
Fragile X
- Fragile X Association of Australia
Ph: 1300 394 636 | Em: support@fragilex.org.au | Web: www.fragilex.org.au - Fragile X Alliance Inc (Victoria) Clinic and Resource Centre
Ph: (03) 9528 1910 | Em: jcohen@travelclinic.com.au | Web: www.fragilex.com.au
Hearing impairment
- Advisory Council for Children with Impaired Hearing (Vic)
Ph: (03) 9877 1300 | Em: information@taralye.vic.edu.au | Web: www.taralye.vic.edu.au - Australian Hearing
Ph: 131 797 | Web: www.hearing.com.au - Aussie Deaf Kids
Ph: (02) 8197 0444 | Em: info@aussiedeafkids.org.au | Web: www.aussiedeafkids.org.au - Deaf Australia
Ph: (07) 3357 8266 | TTY: (07) 3357 8277 | Em: info@deafau.org.au | Web: www.deafau.org.au - Deaf Children Australia
Helpline: 1800 645 916 | TTY: (03) 9510 7143 | Em: helpline@deafchildren.org.au | Web: www.deafchildrenaustralia.org.au - Deafness Forum of Australia
Ph: 133 677 | TTY: (02) 6262 7809 | Web: www.deafnessforum.org.au - The Deaf Society of New South Wales
Ph: (02) 8833 3600 | Em: info@deafsociety.com | Web: www.deafsocietynsw.org.au - Parent Council for Deaf Education
Ph: (02) 9871 3049 | TTY: (02) 9871 3025 | Em: pcde@bigpond.com | Web: www.pcde.org - Royal Institute for Deaf and Blind Children
Ph: (02) 9871 1233 (TTY/V) | Em: online@ridbc.org.au | Web: www.ridbc.org.au - Better Hearing Australia (Victoria)
Ph: 1300 242 842 | Web: www.betterhearing.org.au - ACT Deafness Resource Centre
Ph: (02) 6287 4393 | Web: www.actdrc.org.au - Tasdeaf
Ph: (03) 6231 6501 | Web: www.tasdeaf.org.au
Vision impairment
- Vision Australia
Ph: 1300 847 466 | TTY: (02) 9334 3260 | Em: info@visionaustralia.org.au | Web: www.visionaustralia.org.au - Blind Citizens Australia
Ph: 1800 033 660 | TTY: (03) 9639 1728 | Em: bca@bca.org.au | Web: www.bca.org.au - Royal Institute for Deaf and Blind Children
Ph: (02) 9871 1233 (TTY/V) | Em: online@ridbc.org.au | Web: www.ridbc.org.au - The Royal Society for the Blind
Ph: (08) 8417 5599 | Web: www.rsb.org.au - Guide Dogs Victoria
Ph: (03) 9854 4444 | Web: www.guidedogsvictoria.com.au - Guide Dogs Queensland
Ph: 1800 810 122 | Web: www.guidedogsqld.com.au - Guide Dogs NSW/ACT
Ph: (02) 9412 9300 | Web: www.guidedogs.com.au - Association for the Blind (Guide Dogs WA)
Ph: 1800 847 466 | Web: www.guidedogswa.com.au - Guide Dogs SA/NT
Ph: 1800 738 855 | Web: www.guidedogs.org.au - Royal Guide Dogs Tasmania
Ph: 1800 484 333 | Web: www.royalguidedogs.com.au
Angelman Syndrome
- Angelman Syndrome Association
Ph: 0438 835 886 | Em: president@angelmansyndrome.org | Web: www.angelmansyndrome.org - Angelman Syndrome Association of Western Australia Inc
Ph: 0408 445 975 | Web: www.angelmanwa.com.au - Queensland Angelman Association
Web: www.angelmansyndromeqld.org - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au
CHARGE Syndrome
- CHARGE Syndrome of Australasia
Em: ken.charge@hotmail.com | Web: www.chargesyndrome.org.au - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au
Cornelia de Lange Syndrome
- Cornelia de Lange Syndrome Association (Australasia) Inc.
Ph: (02) 9211 1462 | Web: www.cdlsaus.org - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au
Cri du Chat Syndrome
- Cri du Chat Support Group of Australia Inc
Ph: (03) 9775 9962 | Web: www.criduchat.asn.au - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au
Kabuki Syndrome
- Australian Kabuki Syndrome Association Inc.
Web: www.kabukisyndromeassoc.com.au - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au - Supporting Aussie Kids with Kabuki Syndrome
Ph: 0422 608 858 | Web: www.sakks.org
Microcephaly
- Microcephaly Australia
Web: www.facebook.com/pages/Microcephaly-Australia - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au
Prader Willi Syndrome
- Prader-Willi Syndrome (PWS) Association of Australia Inc.
Web: www.pws.org.au - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au - PWSA of Victoria
Ph: 0451 797 284 | Web: www.pws.asn.au - PWSA of New South Wales
Web: www.pws.org.au/nsw - Prader-Willi Syndrome Association of Western Australia
Ph: 0439 436 344
Williams Syndrome
- Williams Syndrome Family Support Group
Web: www.home.vicnet.net.au/~wsfsg/ - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au - Williams Syndrome Association of SA Inc.
Ph: (08) 7329 5409 | Web: www.wsasa.org.au
Smith-Magenis Syndrome
- Smith-Magenis Australia
Web: www.smithmagenisaustralia.com - The Association of Genetic Support of Australia Inc (AGSA)
Ph: (02) 9211 1462 | Web: www.agsa-geneticsupport.org.au
Other information and services
- Playgroup Australia
Ph: 1800 171 882 | Em: info@playgroupaustralia.com.au | Web: www.playgroupaustralia.com.au - Raising Children Network
Web: www.raisingchildren.net.au
Better Start Early Intervention Service Providers
Better Start Early Intervention Service Providers are listed on the Department of Families, Housing, Community Services and Indigenous Affairs at www.fahcsia.gov.au/betterstart
Aids and Equipment Services
If you have a disability, you may use aids or equipment to support you in various activities or to improve your quality of life. A number of schemes are available which provide some form of subsidy to eligible applicants for aids and equipment. More information is available at jobaccess.gov.au.
Disclaimer
Carers Australia does not endorse or recommend any of the agencies or organisations listed on this website; nor the services that may be provided by them. These details are provided to assist families to find suitable services and supports and to make an informed choice.